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beautifully written, and horribly gut-wrenching. your writing is always extremely impressive, and I can only wish you the absolute best for all the life you do get to live - thank you for choosing to spend a little bit of that time sharing your art with us, truly.
Thankfully, I get more than ten years to live if this diagnosis gets confirmed. I just won't be able to work or live independently for as long as I'd hoped for.
your writing is so beautiful and moving, and absolutely devastating. the hope that runs through it is so powerful despite how terrible the circumstances are. please keep that hope alive, and stay safe. thank you for sharing your writing! - j
The part where you're looking up at your body at thinking it isn't you yet it's still responsible for much of what you experience in life is very relatable and saddening to me as someone with chronic illnesses. Thanks for sharing and I hope you keep doing your best with the body you've got.